One week ago, Friday Tim and I went in to Clinic. We did not leave the hospital until Monday afternoon. The medication was suppressing Tim's ability to make Red Blood Cells, or White Blood cells. He got 5 units of blood over the 4 day period. Each time they have to watch to make sure the new blood does not react with his blood. It was very nerve racking. I have several phone calls as I talked my way through the long weekend. It is hard. We know that he needed this and it would end the dizzy, faint, feeling he had. The blood would give him the energy he needed to be able to exercise, to heal, and to get home. It was just the act of having to go back to the hospital again. The 4th time this fall. Yet, for many transplants, this is very common.
Now because they have discontinued the medication that has created this problem, he will now need a new type of medication, in the form of respiratory therapy. Our first one is tomorrow at 1 pm. Hopefully the roads cooperate and we make it in.
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